Resources/Information

Whether you’re a consumer, family member, or professional, finding the right resources can be a challenge.

We present here a brief introduction to the resources that may be available to you in addition to Caregiver Homes. If you are focused on a state that Caregiver Homes serves today, we suggest you link to the state-specific resource pages we have developed: Rhode Island or Massachusetts.

What types of resources are available to elders and individuals with disabilities? The first thought for many is medical services and products. While doctors and nurses provide important aspects of care, other, community resources are usually necessary too. For an individual with modest needs, these may include home-delivered meals or 1-2 hours a week of companionship, delivered by family, neighbors, a private charity, or a public program. For others, help with bathing, dressing or other personal care is needed. Resources for the home – like fuel assistance –are also important. These community resources are the primary focus here.

Many community resources for elders and individuals with disabilities are paid for by the state or federal governments. While these websites are not always easy to navigate, they can be a good starting point. If you don’t find them helpful, move on to the next section.


Federal Government Resources:

Medicaid CMS
http://www.cms.gov/
CMS is the federal agency which administers Medicare, Medicaid, and the Children's Health Insurance Program.

Social Security Administration
http://www.ssa.gov 
SSA.gov provides resources for all you Social Security related questions.

Substance Abuse and Mental Health Services Administration
http://www.samhsa.gov/treatment/index.aspx
The Substance Abuse and Mental Health Services Administration provides resources to find treatment for Substance Abuse and Mental Health Issues in their local area.

US Department of Veterans Affairs
http://www.va.gov 
VA provides a wide range of benefits and supports to Veterans and their families.

Disability.gov
https://www.disability.gov/
Disability.gov provides comprehensive information about disability programs, services, laws and benefits.


There are many organizations whose mission includes helping individuals find the right community resources. These include agencies designated by government to provide information and make referrals to specific services, and advocacy organizations that work to improve life for individuals with disabilities and may have experience and knowledge of community resources.


Information and Referral Agencies:

Administration on Community Living
http://www.acl.gov/index.aspx
The Administration on Community living promotes strategies that enables elders and people with disabilities live in their communities.

Family Caregiver Alliance
http://www.caregiver.org 
The FCA provides support and sustains the work of families nationwide caring for loved ones with chronic, disabling health conditions.

Aging and Resource Disability Center- Technical Assistance Exchange
http://www.adrc-tae.acl.gov/
The ADRC assists consumers with identifying and accessing a range of home and community based resources that maintain individual independence.

Area Agencies on Aging (n4a)
http://www.n4a.org 
The National Association of Area Agencies on Aging (n4a) is the leading voice on aging issues and a champion for Title VI Native American aging programs.

Eldercare Locator (Administration on Aging)*
http://www.eldercare.gov 
Part of the U.S. Administration on Aging, Eldercare connects people to services for older adults and their families.


Advocacy Organizations:

National Alliance on Mental Illness
http://www.nami.org 
NAMI advocates for access to services, treatment, supports and research and is committed to raising awareness and build a community for hope for all of those in need.

National Disability Rights Network
http://www.ndrn.org/index.php
NDRN is the largest provider of legally based advocacy services to people with disabilities in the United States.

Alzheimer’s Association
http://www.alz.org 
Alzheimer's Association advances research to end Alzheimer's and dementia while enhancing care for those living with the disease.

The ARC
http://www.thearc.org/
ARC promotes and protects the human rights of people with intellectual and developmental disabilities.

National Council on Disability
http://www.ncd.gov/
NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities

National Autism and Resource Information Center
http://autismnow.org
The National Autism Resource and Information Center provides resources and information for individuals with Autism Spectrum Disorders (ASD) and other developmental disabilities, their families, and other targeted key stakeholders.

PACER Center
http://www.pacer.org/
PACER Center is a parent training and information center for families of children and youth with all disabilities from birth through 21 years old.


At the end of the day, you will want to find specific providers to meet your needs or those of a loved one, patient, or client. Nationally, there are thousands of providers – far too many to list here. Many serve a small area (a single city or a county). While many do excellent work, we encourage you to ask for references and let the provider know if you have questions or concerns about the service being provided. While many community resources are paid for by government, you, your loved one, or your patient are the consumer and the services provided should support your independence and dignity. To see specific resources in your state, we suggest you link to the state-specific resource pages we have developed:  Rhode Island or Massachusetts.

 

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